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Monday, July 5th 2010

5:36 PM

Hot enough for you?

Well it is for me, and then some.  I'll be cranking up the AC shortly.  Feeling better from the whatever it was I had last week but still doing a lot of sleeping, especially when it's hot and humid.  Went to the State and to Social Security late last week and came away with instructions to bring in more paperwork, which I have all gathered up and ready to go now.  Of course today being the Monday after a Sunday holiday no government offices are open.  So tomorrow will be a busy day.  I have to have the doctor redo the paperwork he did last week because the state caseworker wants to use their SSI Disablity advocate to help expidite my claim and get me on Disability quickly.  I qualify for  medicaid, foodstamps and after tomorrow cash assistance from the state which is why the caseworker wants to get my disabiity going. 

That's pretty much what I was hoping for anyway.  If I can't work I think I should be on disablity rather than welfare since it is available.  Right now though I'm broke, hopefully after tomorrow I'll have a better grip on funds.   I need to start getting more wholistic and natural foods to help with keeping my flare ups to a minimum however I have found that the heat tends to make me flare and the pain can be unbearable.  It just feels as if my entire collarbone/clavicle and thorax are broken or badly bruised and the pain just won't go away.  That's going to be the first thing to discuss with the Rhumatoidologist when I go because I can't live with this pain for much longer. 

Been trying to get Shannon back up and running with the WIFI but so far not so good.  I found a new avenue to pursue however so this evening I'm going to try it and see what we can accomplish. 

The local vegetable stand has opened up today and I can't wait to start getting fresh corn, tomatoes ,cucumbers and green beans.  I'm going to buy large quantites of the corn and green beans and freeze them so they will be availsble later in the year.  Fresh green beans with a bit of olive oil and garlic....oh sooooooo good!

Well gotta get myself ready to pick up Shannon from work. She has tomorrow off so maybe she can join me on my running around tomorrow.  And if I get some cash I'm going to stop at the veggie stand.  Ta Ta for now

 

 

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Thursday, June 24th 2010

9:48 AM

Thursday June 24

I'm still pretty shaken from the spill I took the other night.  Shannon and I spent the afternoon and most of Tuesday evening getting things in the livingroom squared away, she got the flat screen television hooked up.  We managed to get the other recliner into the livingroom as well. 

Now I have a mess in my room that I have to clean up and of crou

se that is going to take a bit of time feeling as I do.  Went yesterday to get some advice on the cough I've been having, got an antibiotic.  Discussed the next plan of action with the doctor about the Lupus and he filled out the medicaid paperwork so I can send it in today.

Once I get the insurance I will be able to set up an appointment with any rhumatoid specilaist even though the doctor's office has me set up with one tentavily for August.  The insurance will kick in sooner than that and I will be free to get in sooner and get on a 'healing path' sooner as well. 

I didn't know how tired I was yesterday until we got home.  Was going to go out and get the antibiotics after I took a brief nap but that "brief nap" wound up with me sleeping until night, woke up not feeling up to moving at all, got a glass of water, watched t.lv. and went back to sleep. 

Slept through until about 8:00 this morning, had to get up, make some calls, gotta take Shannon to work.  Took the dogs out and still feel "spaced".  When I get home I'll do a bit of "puttering" then back to bed.  I have to get my strength built back up. 

 

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Monday, June 21st 2010

12:07 PM

It finally has a name

All those years I spent shielding my eyes from the sun because it hurt.  Joking about being "part vampire" .  The skin rashes that were unexplained, the dry scaly patches.  The sudden change from being able to lie in the sun for hours to running for cover because of the burning.  The lethargy, the fatigue for no reason.  Getting up doing the dishes then going back to bed because I had exhausted myself!  It finally has a name. 

Lupus, I am reminded how my fingers and toes hurt when it's cold.  Sometimes I have to run my hands under warm water to stop them from hurting.  How did I get it?  Where did it come from?  Is it hereditary? My paternal grandmother was in a wheel chair throughout most of my childhood.  I remember there being said she had "rhumatism" could that have been Lupus?  Why wasn't I diagnosed sooner? 

I had been to the doctor many times 3 years ago complaining of the aches and pains, had pneumonia which the doctor turned around and said she wasn't treating me for...she kept upping the dosage of my thyroid medication and telling me that I needed to loose weight.  But she wouldn't listen when I would tell her that exercise totally exhausted me and that my joints were in constant pain.  I had a lump at my elbow I wanted her to look at and she just threw up her hands and said "Fine we'll get an mri of that arm", and out the door she went. 

The lump on my arm the knots in my back/shoulder all from Lupus, the swelling of my feet not water retention but a symptom of Lupus.  If it is hereditary will Shannon have it?  Oh I don't want her to go through this.  The constant pain, the inablity to actually enjoy a shopping spree at the mall.  The need to return to bed because you took the dogs out and are exhausted now...

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Thursday, June 17th 2010

9:29 PM

Thursday, still hacking up my lungs

I'm sort of feeling better. Still coughing pretty violently but not as much. I have been able to get a bit more sleep at night. Funny the dogs give me dirty looks when I wake up to cough my head off. Sadie looks as if sh't trying to hack up a furball like a cat. Not all that motiviated either. I get so tired, sitting here playing solitare I almost fall asleep, good thing my bed is right over there. I did get the application for the health insurance sponsored by the state and once I get all of my paperwork together I'll be sending it off. Got the car registration renewal as well. Funny, in California it's $114 but here it's only $36. Yesterday Shannon went to Philly with friends came back with a "We the people" mug and LIberty Bell Keychain for me. Had a good time. I'm glad she's getting out and going places with friends. She was doing laundry most of today. I'm really tired now so I'm going to just crawl off to bed.
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Monday, June 14th 2010

12:01 PM

Anitbiotics and cough meds

So the coughs aren't as frequent nor as debilitating now but it still hurts, in my upper back and clavicle from straining to get the mucus up.  The infection didn't get all the way into my lungs this time so I am thankful for the antibiotics for doing their job keeping it out of my lungs. 

My breathing hasn't been effectged that much, I've only had to use my inhaler a couple of times.  But I still get weak and tired after...haven't really eaten in two days, lots of water, coffee and crackers, just haven't been all that hungry...

So I must be getting better, my appetitite is coming back like a pot smoker with the munchies...

 

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Saturday, June 12th 2010

12:17 AM

After midnight

I don't know if I want to go to bed. I've been coughing so hard it feels like I'm trying to "cough up my throat". Yes I took cough medicine I'm coughing up some yellow gunk. The coughing is giving me a headache, I need rest but I keep coughing.


Goodness I sound whiny don't I? As I said I have yellow gunk coming up but I think that stuff is coming from my sinuses, post nasal drip ya know? It doesn't feel like it's in my lungs I can breath fine...just coughing, my throat feels horrid, and I ache...I can't wait to get my antibiotics.


While I'm out tomorrow I'm going to get some chicken and rice soup as well...comfort food for when I'm feeling sick. And I'm going to sleep, and sleep and sleep some more.....


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Friday, June 11th 2010

6:55 PM

A weekend

So a couple of days ago I had to take Shannon to the doctor.  Not a major problem but I wasn't planning on going in since I really wasn't feeling up to par and wasn't sure I'd make it the distance from where I parked the car to the clinic.  So I sat in the car....for almost two hours!  On a damp cold day.  As I said I wasn't feeling up to par, the rain and cold had me achy my left leg felt like the bone had snapped and my right clavicle wouldn't stop aching and aching even after ibuprofen. 

Anyway I waited, and waited, had my headphones with me but my ipod died, should have taken my crocheting.  I called Shannon to see how long it would be and found out that the doctor was out to lunch and wouldn't be back until 3:00...that was at 2:00 we got there at about 1:15.  Finaly close to 4:00 she called and was ready, I drover round to the entrance and we headed to Wal Mart where Shannon got her prescription for Amoxocillin filled yeah sinus infection...then we headed home. 

For the next couple of days I noticed I seemed to be thirsty all the time.  My throat was constantly dry and I was drinking more water than I usually do.  Then yesterday I started having what I call "sneezing fits" and I knew, the weather the day I took Shannon to doctor had it's affect on me and I wasn't going to be feeling any better any time soon. 

Woke up this morning feeling like I had swallowed barbed wire and razor blades.  I was more achy than usual yesterday and it was hard for me to get out of bed...so painful, but I had to get up so I could take Shannon to work.  This morning I was in such pain that there was no way I could even drive.  I could hardly get up to let the dogs out and my head was beginning to pound.  Took my temprature a little higher than my norm.  So I checked my account with Wal Mart pharmacy and found that I had one refill left on my antibiotics so I ordered the refill to be picked up tomorrrow. 

Took Shannon to get some Sudafed 24 hour then came home and was lazy most of the day.  Shannon had a dinner date with a guy who works at the Wal Mart Warehouse.  Right now I'm looking at my bed and feeling that very soon even though NCIS is on right now I'll be crawling into it...after the cough medicine and pain pills kick in....good thing the tissues have lotion in them...

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Friday, June 4th 2010

6:48 PM

It was a GOOD day today

I don't know where the montivation or the energy came from today but I spent most of my day getting my room rearranged so that everything I use is now housed in my room rather than some of it being in the living room. I cleaned up the larger desk, got it all set up and with the laptop there is so much more room so I can put the printer up here along with my "office supplies" I'm going to see if I can get the other lapto9p fixed and use it as a backup/storage.

Like I said I don't know where the energy came from though, I hardly got any sleep last night. I just couldn't get to sleep, wasn't tired quite a change for me since I'm usually grabbing a nap between taking Shannon to work and early evening. But it felt good to accomplish something for a change. I didn't even stop to eat. Well I did have a couploe slices of toast this morning with coffee but that was it. The dogs were watching me and I'm sure I confused them although they did enjoy their trips otuside and the "goodies" the recieved after accomplishing their "business" outside. I still have to toss the garbage out and get a few things in the kitchen taken care of.


After that I'm going to sit back with a burger, some fries and a cold drink, relax, and hopefully get some sleep tonight, I really don't want to see another sunrise tomorrow.

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Friday, May 28th 2010

5:00 PM

Heat, Humidity and a new laptop

Wednesday was not a very good day.  So hot and humid and to top it off I sent my laptop crashing when I bumped the chair against the pedestal!  Once I got everything picked up and checked I found that the AC adapter "post" had broken off and the battery died about two minutes after that.  All of those files are inaccessable now!  Talk about being upset!  So much work is locked up on that laptop, all of my fonts, my graphics, backgrounds, games...favorites, and now I'm having to redo all of that...all of my music files!  grrrrrrrr

Thanks to Shannon I was able to use her laptop and literally fell in love with it.  The keyboard was so much easier to use than my laptop I made it a point to go on a hunt for one like her's.   Found it at Wal Mart (of course) So Wednesday even though it was her day off Shannon and I went to Wal Mart and I purchased a new laptop.  Eventually I'll get the other one repaired to use as a "hub"/storage with the printer, scanner and other periphials so that Shannon and I can save room on our computers for what we use daily. 

Like I said it was hot and humid and once we got home and I got things set up with the new computer I crashed.  Poor Pebbles was so miserable she was "howling" she was so miserable and Sadie was very concerned.  I dug out the small fan and set it up for the dogs and Pebbles began feeling better.  I also turned on the air conditioner and I began to feel better.  It wasn't a good night for sleeping even with the air conditioner on though. 

Thursday I took Shannon to the doctor, she's been having pains in her left arm and doesn't have a clue why.  She doesn't remember banging or hitting it on anything.  It's not her dominant hand so carpal tunnel or repetive stress is out.  But touching it sends her over the edge.  Doctor prescribed ibuprofen and is setting up an ultrasound to figure out what the heck is going on.  My thoughts...Fibromylagia? 

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Tuesday, May 25th 2010

10:14 PM

Murphy's Law?

So last night I was feeling pretty bad.  Had a bad one the night before and I was pretty tired.  I was trying to get to something on the other side of my desk when my chair bumped the laptop pedistal and everything went crashing to the floor.  So I picked it all up and at first it looked like everything was okay but upon further inspection I found that the end of the AC adapter hooked to the computer had broken and as I sat there trying to figure out what to do the battery died...everything for my website is on that computer, my music, my tax papers...

Luckily I'm in the black with my bank account because tomorrow it's off to Wall Mart where I'm going to check out the laptops/notebooks....

I spent most of today sleeping which did help a bit.  But I'm still in pain and yeah took my meds so that in a bit they will be kicking in and I'll be snoozing.  I hate when things go wrong when I'm not feeling good...sigh

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